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Quality of life in children: A critical examination of concepts, approaches, issues, and future directions

机译:儿童生活质量:对概念,方法,问题和未来方向的批判性检查

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摘要

The quality of children's life is important both as an investment in the future of our society and because children constitute an important group of themselves and deserve to experience well-being presently. Quality of life (QOL) has been conceptualized and studied in children for several decades, but with disparate approaches that have rarely been discussed jointly with application to children in general. Here we describe and critically examine the three main approaches to children's QOL: health-related QOL (HRQOL), social indicators, and subjective well-being (SWB). Although this is not a review of instruments per se, we illustrate these approaches by describing their most prominent measures. Issues and opportunities in research on children's QOL are then discussed related to conceptual clarity, content specification, range of experience, subjective and objective perspectives, development in childhood, reporting source, and malleability of QOL. Finally, directions for advancing children's QOL are considered. We highlight the benefits of focusing on social indicators and SWB, rather than HRQOL, when representing this concept for children in general, the need for applying more sophisticated research strategies, and using QOL as a universal indicator of success whenever we intend to advance the well-being of children through intervention, programs, and policy.
机译:儿童的生活质量很重要,既是对我们社会未来的一种投资,又因为儿童是他们自己的重要群体,应在当下体验幸福。人们已经对儿童的生活质量(QOL)进行了概念化和研究数十年,但采用了完全不同的方法,这些方法很少与儿童一起广泛地讨论。在这里,我们描述并批判性地研究了儿童QOL的三种主要方法:与健康相关的QOL(HRQOL),社会指标和主观幸福感(SWB)。尽管这不是对工具本身的评论,但我们通过描述其最突出的措施来说明这些方法。然后讨论了有关儿童生活质量的研究中的问题和机会,涉及概念的清晰度,内容规范,经验范围,主观和客观观点,儿童时期的发展,报告的来源以及生活质量的可延展性。最后,考虑了提高儿童生活质量的方向。当我们为儿童一般代表这个概念时,我们强调着重于社会指标和SWB而不是HRQOL的好处,需要应用更复杂的研究策略,并且每当我们打算提高水平时都需要使用QOL作为成功的通用指标-通过干预,计划和政策成为儿童。

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